Stigma Research

Stigma Research

Stigma, criminalisation of HIV and understanding how people living with HIV experience discrimination is important, In the era of U=U people with HIV have a right to sexual lives that are free from discrimination.  Here are some examples of research that addresses these concerns.

Stigma Indicators Monitoring Project

Stigma Indicators Monitoring Project report cover

NAPWHA is a partner/collaborator on the Stigma Indicators Monitoring Project conducted by the Centre for Social Research in Health, Faculty of Arts and Social Sciences, UNSW Sydney. Stigma and discrimination have remained persistent problems experienced by people living with HIV and it is hoped that through developing a set of indicators that future strategies and interventions to reduce stigma and discrimination can be carefully designed, assessed and measured for their impact. Stage one of the project has produced information on the extent of stigma experienced; details about experiences of people with HIV can be found in a brief report which was published to coincide with Worlds Aids Day in 2018.

Moving into the next stages of the project the aim is to design, trial and assess interventions which aim to reduce stigma. NAPWHA will continue to provide advice through representation on the Project Advisory Committee.

Video:  On 17 August 2021, Carla Treloar facilitated a seminar for the UNSW Centre for Social Research in Health (CSRH UNSW Sydney) Seminar as part of the Spotlight in Stigma series with presentations by Loren Brener, Timothy Broady, Darryl O’Donnell (AFAO) and Aaron Cogle (NAPWHA).

Trust in Digital Health study

Chemical Practices logoTrust in Digital Health study

The Trust in Digital Health study is led by researchers at UNSW Sydney to understand how people from a range of different communities are choosing to store and share their personal health information in a variety of digital health systems and technologies, including electronic health records, apps, social media sites, wearable devices, online forums and virtual health consultations.

While we are interested in understanding what shapes trust in digital health more broadly, very little research has been conducted on this issue with populations affected by or at risk of blood borne viruses (BBVs) and sexually transmissible infections (STIs) in Australia.  This survey is now closed.

Anxiety about HIV criminalisation among people living with HIV in Australia

Many countries, including Australia, have laws that enable criminal prosecution of an individual based on reckless or intentional transmission of HIV to another person.

Previous research has suggested that criminalisation of HIV may serve to hamper public health efforts by inhibiting HIV status disclosure or testing. Limited research to date has sought to examine the broader impact of criminalisation on the health and wellbeing of people living with HIV, which this paper aims to address.

Data for this analysis were obtained from the HIV Futures 8 study. Drawing on cross-sectional data from 895 people living with HIV in Australia, this paper describes associations between standard measures of mental health and resilience with a newly devised scale measuring anxiety about HIV criminalisation.

Findings suggest that laws criminalising HIV transmission have a broadly negative impact on wellbeing of people living with HIV, a situation that is exacerbated for gay and bisexual men, and other people living with HIV who may face intersecting forms of marginalisation based on race, gender or class. There is little justification for these laws being applied in Australia and the findings add weight to advocacy seeking to overturn criminalisation across the world.

Antiretroviral therapy use, viral detectability and fear of onward transmission among people living with HIV in Australia

This paper examines how ART use, viral detectability and attitudes towards the onward transmission of HIV have changed among PLHIV in Australia between 1997 and 2018.

Norman, T., Bourne, A., Lyons, A., & Rule, J., & Power, J. (2022). Antiretroviral therapy use, viral detectability and fear of onward transmission among people living with HIV in Australia: Changes between 1997 and 2018. AIDS and Behaviour. 

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