Frequently Asked Questions (FAQs)
1. What are the benefits when I ‘connect with NAPWHA’ and supply my contact details and subscribe via in the webform?
There are times when we need to share information of importance to every person living with HIV in Australia.
In 2020, NAPWHA needed to reassure you that treatment supplies were not affected during the first few months of the COVID-19 global pandemic; and to inform you of ways to access treatment from home.
In 2020, for people whose income had dropped during the COVID-19 crisis, we assisted with an ARV relief fund that provided assistance for people living with HIV still paying full price co-payments for HIV medications.
By connecting with NAPWHA, we keep you informed about treatment updates and any information about treatment changes or disruptions which occur through the Pharmaceutical Benefits Scheme (PBS).
We keep you informed about any changes to current legislation and laws which may affect people living with HIV. One example of this is the announcement for overseas residents who are living with HIV, in Australia on a temporary visa and ineligible for Medicare, who will gain access to HIV treatment and care in 2021.
2. What are some of the examples of communications that NAPWHA distributes to subscribers?
NAPWHA often sends out communiques which is sent out to your email address as an electronic direct mail called NAPWHA Digital.
Content include the publishing of:
- Treatment factsheets
- Positive Living articles (these are written editorial pieces written by and for people living with HIV)
- Invitations to the National Day of Women Living with HIV falling each year on 9 March
- New inspirational and inspiring community campaigns, such as HIV is: Just a part of me
- Invitations to community events which are closed-group spaces, such as Chinwag: Positive Connections
3. How would my privacy and confidentiality be respected?
NAPWHA has had a long history of being a trusted organisation representing people living with HIV in Australia.
When you engage with NAPWHA for any reason we will record the contact details you provide in order to keep you up-to-date on our activities. However, we do not collect sensitive information without your consent.
4. Do I have to provide my real name?
You have the option of not identifying yourself, or using a pseudonym, when dealing with NAPWHA in relation to a particular matter.
It is only in some cases, if you do not provide NAPWHA with your personal information when requested, we may not be able to respond to your request or provide you with what you are requesting.
5. How does NAPWHA process any complaints or inquiries about privacy?
The Privacy Officer contact is:
Adrian Ogier, NAPWHA Deputy Director