There are many aspects of health management for people living with HIV and NAPWHA aims to provide as much information as possible on the latest health research.
Assessments of public health and community
organisation responses to COVID-19 and other
infectious diseases by LGBTIQA+ people and those
living with blood-borne viruses
NAPWHA was a supporter of the project ‘Diverse Experiences and Understandings of Immunity in the Pandemic Age’. This research briefing paper provides preliminary findings from the project, of interviews conducted in 2022-2023. The aim of this research was to identify how Australians from specific at-risk social and community groups experience and understand the relationship between immunity and good health, especially In an era in which the serious risks to health posed by existing viral infections and diseases, are now joined by those from novel diseases such as COVID-19 and mpox.
Thirty semi-structured interviews were conducted with four key sub-groups: people identifying as LGBTIQA+ and people with lived experience of HIV, hepatitis B (HBV) and hepatitis C (HCV). NAPWHA supports all the recommendations of this briefing paper, and particularly, one of the key recommendations that; Finding ways for public health agencies and health communication campaign managers to work more closely and productively with trusted community organisations would strengthen prevention and education initiatives for COVID and other infectious disease prevention and treatment.
Perspectives on new HIV insights and options: preliminary findings from interviews with Australian men with HIV and healthcare providers.
NAPWHA supports and assisted in the recruitment for this research which aimed to explore the perspectives of gay, bisexual, and other men who have sex with men living with HIV about communications with healthcare providers in the context of new knowledges about HIV transmission and treatment options. This is a preliminary report describing some of the findings from interviews with people living with HIV and their healthcare providers.
From this research, relevant and timely recommendations are emerging for preferred way of communicating about U = U. One good example, that NAPWHA supports as achievable, is a recommendation that health centres have U = U posters or other visual prompts to encourage conversations about U = U, including conversations about U = U with HIV-negative patients or those at risk for HIV. Some more detailed responses from participants are found in this summary.
Age-related Clonal Haematopoiesis in an HIV Evaluation Cohort (ARCHIVE)
The ARCHIVE study (Clinical Trial NCT04641013) is an observational longitudinal cohort study of people with and without HIV who are over the age of 55. The study, conducted by Australian scientists from the Kirby Institute at UNSW Sydney and the Peter MacCallum Cancer Centre, is planned for 10 years, with study visits every 1-2 years, that evaluates genomic and other factors associated with aging, stratified by HIV status.
In June 2021, results were published in the journal Nature Medicine uncovering a vital link in the relationship between HIV and ageing, evaluating the age-related genetic changes in over 400 participants from nine sites at hospitals and community practices.
The study found that people living with HIV had a higher rate of clonal haematopoiesis (CH), which results when a genetic mutation develops in a small number of blood stem cells and is a common finding among older people.
Trust in Digital Health study
The Trust in Digital Health study is led by researchers at UNSW Sydney to understand how people from a range of different communities are choosing to store and share their personal health information in a variety of digital health systems and technologies, including electronic health records, apps, social media sites, wearable devices, online forums and virtual health consultations.
While we are interested in understanding what shapes trust in digital health more broadly, very little research has been conducted on this issue with populations affected by or at risk of blood borne viruses (BBVs) and sexually transmissible infections (STIs) in Australia. This survey is now closed.
Perceptions of COVID-19 Vaccines: Lessons from Selected Populations Who Experience Discrimination in the Australian Healthcare System
This paper investigates perspectives of COVID-19 vaccination among PWID, PLHIV, GBM, and Aboriginal Peoples and identifies how perspectives align and differ.
Daniel Storer, Lise Lafferty, Simon Graham, Dean Murphy, Jake Rance, Loren Brener, Holly Seale, Mohamed A. Hammoud, Garrett Prestage, Mitchell Beadman, Kristy Gardner, Megan Blaxland, Reuben Bolt, Theresa Caruana, Steven Philpot, John Rule, Joanne Bryant, “Perceptions of COVID-19 Vaccines: Lessons from Selected Populations Who Experience Discrimination in the Australian Healthcare System”, Health & Social Care in the Community, vol. 2023, Article ID 5901128, 10 pages, 2023. https://doi.org/10.1155/2023/5901128