Michelle Tobin delivers powerful speech at the 2019 Aboriginal & Torres Strait Islander HIV Awareness Week launch

NAPWHA had the privilege of attending the formal national launch of ATSIHAW 2019 (Aboriginal and Torres Strait Islander HIV Awareness Week) held as a breakfast event in Parliament House on 27 November 2019, hosted by Mr Tim Wilson & Senator Louise Pratt Co-Chair – Co-Chairs, Parliamentary Liaison Group on HIV/AIDS, Blood Borne Viruses and Sexually Transmitted Diseases. The event held each year in the first week of December, coincides with World AIDS Day to draw attention to the increasing impact of sexually transmitted infections (STIs) on Aboriginal and Torres Strait Islander communities. Powerful speeches were delivered urging the imperative to not leave our First Nations people behind in the work we are doing to prevent transmissions and support people living with HIV, and the need for targeted, culturally appropriate and community led approaches.

Read the transcript from Michelle Tobin’s powerful speech below. Michelle is Chair of Anwernekenhe National HIV Alliance (ANA) Committee and Convenor of Positive Aboriginal Torres Strait Islander Network (PATSIN).

“Firstly, I would like to acknowledge the traditional Custodians of the land, our Elders Past and present to which I pay my respect. I also would like to acknowledge my brothers, sisters, colleagues and friends in the room. I would also like thank Mr Tim Wilson & Senator Louise Pratt Co-Chair of the Parliamentary Friends for Action on HIV/AIDS, Blood Borne Viruses and Sexually Transmitted Diseases along with Aunty Matilda House, Dr Dawn Casey of NACCHO, Also would like to thank James Ward of SAHMRI and his staff Linda and Kathleen for your hard work and dedication for ATSIHAW.

My name is Michelle Tobin. I’m an Aboriginal woman who’s lived with HIV since 1990, I am a mother, grandmother, daughter, sister and aunty and I‘m passionate about making sure HIV isn’t added to the long list of health issues affecting our communities.

The Positive Aboriginal Torres Strait Islander Network (PATSIN) is the voice of Aboriginal Torres Strait Islander People living with HIV. And the re-established of Anwernekenhe National HIV Alliance (ANA) Committee is dedicated to ensuring that the needs of Indigenous peoples are amplified and heard when it comes to those living with HIV and messages about prevention, testing and treatment.

Aboriginal and Torres Strait Islander communities shoulder an ever larger share of Australian HIV transmission. In one of the world’s wealthiest nations, this is intolerable.

While the broader HIV prevention effort delivered Australia’s lowest rate of transmission since 2001, new transmission among Aboriginal and Torres Strait Islander people has now doubled since 2011.

The latest technology and medicine is simply not cascading into our communities. We have a different epidemic, with greater transmission through heterosexual sex and injecting drug use than non-indigenous Australians. And while the non-indigenous population experiences signs of declining stigma, this is not the case in Aboiriginal and Torres Strait Islander communities.

These dynamics demand a vastly differentiated approach to HIV prevention and treatment, with serious resourcing.

We need a tailored approach that begins with better awareness of HIV through culturally appropriate, community-level communication. This must be particularly focused on women and people who inject drugs.

The benefits of both PrEP and Treatment as Prevention also need to be thoroughly promoted and communicated. Awareness and availability of PrEP is nowhere near where it should be. Any Aboriginal or Torres Strait Islander person with a medium to high risk of HIV must be made aware of this extraordinary new medicine and given access to it.

Similarly, we need a step change in testing. An estimated 20 per cent of Aboriginal and Torres Strait Islander HIV infections are undiagnosed. This compares with only seven per cent in the non-indigenous community. This is undoubtedly fueling our epidemic and every testing tool in our arsenal must be deployed to firstly improve awareness of HIV status, and then promptly move those who are positive onto treatment.

Critically important are the skills of the Aboriginal and Torres Strait Islander HIV workforce. Despite best efforts and intentions, there is simply not enough investment. Areas such as primary and specialist care, management, surveillance and research suffer from a chronic shortfall of resources. Culturally appropriate training and skill development is an urgent priority.

Health promotion interventions targeting First Nations populations are crucial to alleviating the symptoms of stigma and discrimination felt by people living with HIV. Interventions must aim to dispel myths and correct inaccuracies surrounding HIV transmission and prevention. It is essential that development and planning processes are collaborative efforts between mainstream healthcare services and First Nations People in order to appropriately contextualise information.

The limited availability of culturally appropriate healthcare services presents as an issue that must be addressed. Cultural capacity building training for healthcare organisations may assist in bridging this gap, however it is essential that employment of First Nations HIV professionals becomes a priority. Peer navigation programs could assist in engaging with First Nations PLHIV and provide opportunities for learning and healing through peer support.

A wealthy, advanced nation such as Australia can and must do better in preventing and treating HIV among its Aboriginal and Torres Strait Islander people. By next World AIDS Day, I hope to have better news to report.

Thank you”

Further Links

COVID-19 health promotion resources recommended by PATSIN

The NAPWHA-auspiced Positive Aboriginal Torres Strait Islander Network (PATSIN) is a national membership-based group for indigenous people living with HIV.

On 30 March 2020, the PATSIN network met virtually to strategise about COVID-19 and it’s impact, and how best to deliver for Aboriginal & Torres Strait Islander communities. They have recommended the below COVID-19 resources for Aboriginal and Torres Strait Islander communities, which have been featured on this webpage and compiled from various organisations.

NACCHO Resources

The National Aboriginal Community Controlled Health Organisation (NACCHO) have updated their website with Coronavirus (COVID-19) updates and information:

When talking about COVID-19 for Aboriginal communities on social media we encourage you to use the following hashtags:

  • #OurjobProtectOurMob
  • #AboriginalHealthinAboriginalHands
  • #StoptheSpread
  • #KeepOurMobSafe

The Aboriginal Health and Medical Research Council (AH&MRC) resources

The Aboriginal Health and Medical Research Council (AH&MRC) assists the Aboriginal Community Controlled Health Services (ACCHSs) across NSW to ensure they have access to an adequately resourced and skilled workforce to provide high-quality health care services for Aboriginal communities:

Strong Spirit Strong Mind resources

The words Strong Spirit Strong Mind evolved in consultation with Aboriginal people from across Western Australia. These words embrace the importance of strengthening our ‘inner spirit’ and were inspired by the Aboriginal Inner Spirit (Ngarlu) Model by the late Joseph ‘Nipper’ Roe of the Yawaru and Karajarri people in North Western Australia. Visit their Coronavirus (COVID-19) Health Alert webpage for informational resources.

PATSIN supports the #BlackLivesMatter movement issuing a call-to-action

Today the Positive Aboriginal Torres Strait Islander Network (PATSIN) met to discuss the Black Lives Matter protest actions taking place in Australia and around the world and to issue this powerful call to action:

PATSIN supports the #BlackLivesMatter movement and stands shoulder-to-shoulder with our black brothers, sisters and all those who stand allied against racism across Australia and the world.

We call for immediate action to address the racist laws, racist policies and racist policing that continues, after 200 years, to make the lives of Aboriginal and Torres Strait Islander people more difficult, shorter and more dangerous than that of their fellow Australians.

The health and wellbeing of Aboriginal and Torres Strait Islander people must be made equal to the rest of Australia.

We demand access. We demand equity. We demand equality.

Original art By Arone Meeks ©

Taking the temperature of the Association — Sam and Wilo

Sam Barsah and Wilo Muwadda from PATSIN (the Positive Aboriginal Torres Strait Islander Network) share stories about life and times, resilience and community during COVID-19 with Dr John Rule (NAPWHA Senior Research Manager). The National Association of People with HIV Australia (NAPWHA) is Australia’s peak non-government organisation representing community-based groups of people living with HIV across Australia. In this video series, we share the experiences and responses of communities managing and adapting to the unfolding 2020 pandemic.

This interview was recorded on 11 August 2020

Related links

Hear His Spirit Flies High, by Tim Bishop and Soul Wun (Helen Anu and Sam Barsah) in the Kala Lagaw Ya language of the Torres Straits. This recording was made possible as a project of the Positive Aboriginal and Torres Strait Islander Network (PATSIN) and NAPWHA. It was a song of great significance and was first publicly performed at a World AIDS Day event in 1998 at Martin Place in Sydney; the beginning of this song’s incredible determination to be heard.

Hear other video episodes

In this series, Dr John Rule reports back from the NAPWHA members to hear about community stories and community-led responses adapting to life during COVID-19.

Taking the Temperature — Episode 02 — Richard Keane
Taking the Temperature — Episode 03 — Kirsty Machon
Taking the Temperature — Episode 04 — Anth McCarthy
Taking the Temperature — Episode 05 — Hayden Patterson
Taking the Temperature — Episode 06 — Charlie Tredway

Heal Country! Find out about NAIDOC Week celebrations

4-11 July is NAIDOC week. The theme for this year’s NAIDOC week is Heal Country!

The theme calls for stronger measures to recognise, protect, and maintain all aspects of Aboriginal and Torres Strait Islander culture and heritage.

You can find out more about the week and all of the activities taking place across Australia below. #NAIDOC2021