There have been substantial reductions in AIDS-related illness and deaths since the introduction of antiretroviral therapy (ART) in 1996. By the end of 2019, 67% of people living with HIV had started treatment with ART and 59% had achieved viral suppression. Despite access to effective ART and viral suppression, people living with HIV often report poor well-being and health-related quality of life.

A multidisciplinary panel of 44 global HIV experts articulate how health systems can advance the long-term well-being of people living with HIV by addressing multi-morbidity, health-related quality of life, stigma and discrimination using an holistic and patient-centred approach.

The 31 consensus points presented in ‘Consensus statement on the role of health systems in advancing the long-term well-being of people living with HIV,’ were endorsed by NAPWHA and more than 65 organisations globally at the time of publishing (July 2021).

This project was led by HIV Outcomes Co-Chair and professor at the Barcelona Institute for Global Health (ISGlobal) Dr Jeffrey V. Lazarus and co-chaired by Ricardo Baptista-Leite (UNITE Founder and President), Nikos Dedes (HIV Outcomes Co-Chair), and Adeeba Kamarulzaman (IAS President).

Dr Graham Brown (Associate Professor and Director of Research and Evaluation, Centre for Social Impact, UNSW), who is also an expert panel members of this project, also co-authored Client-led care in HIV: perspectives from community and practice. The objective from this commentary was to develop a definition of client-led care in the Australian context and its key supporting principles for people living with HIV (PLHIV).

The authors used two sources of evidence to support their HIV community experience with client-led care. They concluded that a client-led approach can complement conventional HIV care strategies and enable empowerment and greater engagement with care, potentially improving the care continuum and overall quality of life (QoL) for individuals living with HIV who can, and want to, lead their own care.

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