NAPWHA Research Webinar: PATSIN epidemiological and public health research

NAPWHA Research Webinar: PATSIN epidemiological and public health research

NAPWHA Research Webinar: PATSIN epidemiological and public health research

“The seminar was a reminder about the importance of building trust as a non-indigenous worker and respecting culture.”

The Positive Aboriginal Torres Strait Islander Network (PATSIN) and the National Association of People living with HIV Australia (NAPWHA) hosted a webinar on Epidemiological and public health research related to Aboriginal, and Torres Strait Islander People living with and affected by HIV, on Wednesday 22nd March 2023. The webinar was attended by Aboriginal and Torres Strait Islander People living with and affected by HIV and people working with, or connected to, HIV community organisations working with Aboriginal and Torres Strait Islander peoples. It was one a series of research capacity building webinars being programmed by the NAPWHA Research Initiatives and was attended by thirty-five people across Australia. 

“The discussion from HIV Futures is a good reminder about the ongoing gap in social determinants of health in the Aboriginal and Torres Strait Islander population, and the complexity of this.”

Dr John Rule, Senior Research Manager at NAPWHA facilitated the webinar which included three presentations followed by a Q&A discussion The webinar was to be co-facilitated by Ms Michele Tobin, PATSIN Convener, who unfortunately could not attend.

Dr Skye McGregor (Kirby Institute UNSW) provided an overview of the discipline of epidemiology, including the type of epidemiological methods she uses, and the kinds of knowledge and information it produces. Dr McGregor talked about the current surveillance data relating to HIV among Aboriginal and Torres Strait Islander People living with and affected by HIV, and the implications of this data for policy, health promotion and health service delivery.

Dr Thomas Norman Australian Research Centre in Sex Health and Society, La Trobe University) provided a brief overview of the HIV Futures Study including the methods and type of knowledge and information it produces. Thomas also talked about findings from the HIV Futures Study in relation to Aboriginal and Torres Strait Islander People living with and affected by HIV and implications for policy, health promotion and health service delivery.

Kristy Gardner, a Kamilaroi woman, who had received the inaugural Yiaga Ngarnga PhD scholarship at the Peter Doherty Institute for Infection and Immunity in 2022, provided the final presentation. Kristy drew on her experiences of working on the Fostering the sexual well-being of Aboriginal young people by building on social, cultural, and personal strengths Project, at Centre for Social Research in Health, UNSW, to talk about innovative, culturally sensitive, and strengths-based approaches to doing research with Aboriginal and Torres Strait Islander People. 

Interested in joining PATSIN and hear about more of these events? Sign up now.

“I was inspired by the information about the inclusion of Indigenous ‘peers’ to engage in focus groups and research, and the additional benefits of this approach when working with Aboriginal and Torres Strait Islander Peoples.”
Webinar: Bi+ Health Awareness Month

Webinar: Bi+ Health Awareness Month

Bi+ and living with HIV: Learning from our experience

 Research shows Bi+ people with HIV have important unmet needs for education, services and support. For Bi+ Health Awareness Month, NAPWHA ran a webinar on ‘Bi+ and Living with HIV – Learning from our experiences’. This dynamic webinar was hosted by Daniel Reeders, Learning Project Officer at NAPWHA.

Participants were given the opportunity to discuss the diverse needs, identities and experiences of Bi+ people with HIV. We heard from researcher Bella Bushby plus three Bi+ people with HIV with a perspective that is both practical and personal. 

NAPWHA Learning Podcast episodes.

In this episode of the NAPWHA Learning podcast, Daniel chats with Steph Lee, a queer and nonbinary person living with HIV, about their attraction to people of multiple genders.

Daniel chats with Steve Spencer about his experience as a Bi+ guy living with HIV — when he first worked out he was attracted to people of multiple genders, how he first came out as a gay man, and how people greeted him coming out again as Bi+!

In this episode of the NAPWHA Learning podcast, Daniel speaks with Steven about his experiences as a Bi+ man living with HIV in a regional centre.

This podcast episode presents the Q&A session from NAPWHA’s recent webinar celebrating Bi+ Health Awareness Month. Watch as Steph Lee, Steven and Steve Spencer answer questions from the audience about living Bi+ and HIV-positive!

Make sure to follow us on Facebook, Instagram, Twitter and LinkedIn to keep and eye out on our next webinar. 

Treatment Outreach Network meeting: Nov 2022

Treatment Outreach Network meeting: Nov 2022

NAPWHA’s Treatment Outreach Network – a membership of professionals from Australian State and Territory peer-based PLHIV organisations and AIDS Councils, held their annual meeting in person on the 9th of November, 2022.

Meeting agenda

1.        Meeting Opening

1.1.       Welcome / Overview of the day
1.2.      Introductions and welcome to new members

2.       2 Drug Regimes

2.1.      Background on the science
2.2.    2DR v 3DR
2.2.1.  Switch
2.2.2.  Initiation
2.3.     Clinical perspective
2.4.     Q&A / Facilitated discussion

3.       Peer Support around Injectable ART

3.1.      Positive Perspective
3.1.1.  Considering Injectable ART
3.1.2.  Finding a clinic
3.1.3.  The journey so far
3.2.     Clinical perspective
3.2.1.  Clinic Readiness
3.2.2.  Working with PLHIV to initiate injectable therapy
3.3.     Providing peer support for PLHIV – Facilitated Discussion
3.3.1.  What does TON need to support or educate PLHIV looking to commence injectable therapy?

4.       HIV Futures 10

4.1.      Presentation
4.2.     Q&A

5.       Emerging Issues / Facilitated Discussion

5.1.      30 minute group discussion on emerging issues from TON members
5.2.    Treatments Roundtable

Break

Lunch

6.       MPX / National Response

6.1.      MPX overview
6.1.1.  What is MPX?
6.1.2.  Transmission
6.1.3.  Epidemiology
6.2.    Australian Response
6.2.1.  MPX National Taskforce
6.2.2.  Vaccination
6.2.3.  Q&A

7.       Conference Report back

7.1.      Report back from the AIDS 2022 and Australasian HIV Conference 2022
7.1.1.  Treatments pipeline / what’s new?
7.1.2.  Emerging clinical research
7.1.3.  IAS 2023

8.       HIV Cure

8.1.     Overview of HIV Cure research
8.2.     Discussion with Cure Study Participant + Q&A
8.3.     HIV Cure Workshop

9.       Reflections / Engagement with research

2 Drug Regimes

In this presentation to the Treatment Outreach Network, Dr Beng Eu from the Prahran Market Clinic presented an overview of 2-Drug Regimens (2DR) for treatment of HIV. In this session, Dr Beng Eu covered:

  • Background on the science
  • 2 Drug Regimens v 3 Drug Regimens: Switch and Initiation
  • Clinical perspective
  • Q&A / Facilitated discussion.

MPOX / National Response

In this presentation to the Treatment Outreach Network, Associate Professor James McMahon from The Alfred, Monash University and the MPOX National Taskforce, presented on MPOX and the Australian response to the outbreak, as well as implications for People Living with HIV.

(Please note: This presentation was recorded prior to the World Health Organisation’s recommendation for a new name for monkeypox disease, MPOX).

HIV Cure

In this presentation to the Treatment Outreach Network, Dr Jillian Lau from Monash University provided a comprehensive background to HIV cure science and research. Dr Lau also presented on future opportunities for HIV cure research and the progress towards a cure. 

About the NAPWHA Treatment Outreach Network

The Treatment Outreach Network (TON) is a formal collaboration of HIV community sector professionals working to optimise the overall wellbeing of People Living with HIV (PLHIV) in Australia, by providing a high standard of information and current research on issues of health and treatments for HIV.

TON’s role is to provide consistent and up-to-date information to HIV sector professionals working at state and territory HIV community organisations as well as PLHIV. NAPWHA maintains a range of partnerships to ensure the aims of the network are met. The network meets formally once per year and informal communication occurs throughout the rest of the year to continue TON’s work.

‘Challenge HIV Stigma’ – Women share their stories for the National Day of Women Living with HIV.

‘Challenge HIV Stigma’ – Women share their stories for the National Day of Women Living with HIV.

National Day of Women Living with HIV all

The National Day of Women Living with HIV occurs annually on 9 March, as an opportunity to celebrate the lives of women living with HIV. This year, NAPWHA’s National Network of Women Living with HIV chose the theme ‘Challenge HIV Stigma’.

In the ongoing battle to end HIV stigma, Australia’s National Network of Women Living with HIV is showcasing to all Australians how women living with HIV challenge HIV-related stigma. The aim of the campaign is to empower women living with HIV who have experienced stigma by giving them a platform to share their stories, and educate people about what HIV stigma looks like.

Here is what some women living with HIV have to say about how they ‘Challenge HIV stigma’ in their day-to-day life.

We encourage you to share these testimonies and support your women living with HIV across Australia.

Women Living Well 

‘Living Well’ is a website set up with the support of NAPWHA’s National Network of Women Living with HIV and has information about some of the key issues for women with HIV

National Network of WLHIV member and Positive Women Victoria vice chair Stephanie Lee Dafnomilis recently released a trailer for their upcoming documentary ‘Exploring HIV Stigma’. The trailer will also be presented at the Australian International Documentary Conference in Melbourne (5-8 March 2023).

When Steph was diagnosed with HIV during COVID lockdown in 2020, their world fell apart. But Steph was not only shocked by this unexpected diagnosis but also by the ongoing HIV-related stigma experienced in daily life. But what was even more shocking was the stigma experienced in healthcare settings.

‘I now call out stigma wherever I see it. What some may call attention seeking, I call education. That’s how I challenge stigma,’ Steph says.

Sydney World Pride 2023

Sydney World Pride 2023

World Pride is in Sydney from
17 Feb – 5 Mar 2023.

NAPWHA would like to welcome people living with HIV who have traveled to Sydney for World Pride and remind you of the support services that are available. Please find a list of services for people living with HIV below or call 02 8568 0300 and we will direct you to the appropriate service provider.

Positive Life NSW (PLNW) https://www.positivelife.org.au/
Ph: (02) 8357 8386
Email: contact@positivelife.org.au
Positive Life NSW offers HIV peer support and referrals.

Bobby Goldsmith Foundation (BGF) https://www.bgf.org.au/
Ph: (02) 9283 8666
Email: bgf@bgf.org.au
BGF offers practical support and referrals.

Albion Centre http://thealbioncentre.org.au/
Ph: (02) 9332 9600
Medical services and treatment support.

HIV/AIDS Legal Centre (HALC) https://halc.org.au/
Ph: (02) 9492 6540
Email: halc@halc.org.au
Legal and immigration advice.
If you would like general information about the law and HIV, you may find their online guides and publications helpful.

Sydney Sexual Health https://www.sshc.org.au/
Ph: (02) 9382 7440
Medical services and treatment support.

WorldPride is a global LGBTQIA+ festival that was established in 2000. Cities around the world compete to host the event. Sydney was chosen by InterPride to be the host of WorldPride in 2023 and will include the Sydney Gay and Lesbian Mardi Gras events, as well as a broad festival offering across arts, sport, theatre, concerts, parties, First Nations programming and a human rights conference. To find out more about what’s on during WorldPride, visit https://sydneyworldpride.com/

‘Boldly Positive’ – NAPWHA community shares their journey for World AIDS Day 2022

‘Boldly Positive’ – NAPWHA community shares their journey for World AIDS Day 2022

World AIDS Day 2022 Boldly Positive

World AIDS Day occurs annually on 1 December to raise awareness about the issues concerning HIV and AIDS globally. It is a day to celebrate the inspiring actions by the HIV and AIDS sector and advocates, show support for people living with HIV, and commemorate those who are no longer with us due to AIDS or other conditions related to HIV.

This year’s theme for World AIDS Day in Australia is ‘Boldly Positive’ which aims to “encourage Australians to educate themselves and others about HIV; to take action to reduce the transmission of HIV by promoting prevention strategies; and to ensure that people living with HIV can participate fully in the life of the community, free from stigma and discrimination.” Read more.

Here are what some people from our member organisations and board have to say about how Positive Living organisations are enabling them and other people living with HIV to be ‘Boldly Positive’.

We encourage you to share these testimonies and support your local World AIDS Day events & HIV organisations.

Internationally: The World Health Organization’s theme this World AIDS Day is ‘Equalize’ reminding us that the inequalities experienced in the HIV epidemic are not inevitable and we can combat them. It is a call for action for an increase in the availability, quality and suitability of services, law reform, and the sharing of technology. Read more.

We just announced our 2022 Community Champions, recognising inspiring action and unsung supporters in HIV.