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Highlights from AIDS2022

Montréal, Canada and virtually  |  29 July — 2 August

The 24th International AIDS Conference #AIDS2022 was held in Montreal, Canada, and virtually. Convened by IAS – the International AIDS Society, the annual event unites scientists, policy makers and activists to galvanize the scientific response, build global solidarity and enhance human dignity for all those living with and affected by HIV. NAPWHA has compiled a selective list of program highlights that may be of interest for our communities below. Also access NAM aidsmap: The official scientific media partner for the conference.

U=U Global Summit

Professor Sharon Lewin address as she takes the reins as President of the IAS

Except:  I look forward to IAS 2023, the 12th IAS Conference on HIV Science, taking place next year in Australia. I had the honour of serving as Local Co-Chair at AIDS 2014 in Melbourne, a memory cast in shadow by the 280 lives that were lost on flight MH17; many were IAS Members, including former IAS President Joep Lange.

It felt impossible to hold a productive meeting after such a tragedy, just as the challenges of today can feel insurmountable. But the secret of success of the HIV movement has always been how we come together – diverse communities, diverse disciplines, from all corners of the world.

Together, harnessing the strength, passion and talent of this movement, we will end this epidemic once and for all.”

HIV Cure Research: Rapportage by Jillian Lau

At AIDS2022, Infectious Diseases doctor, Jillian Lau, who has been involved in HIV cure clinical research at Alfred Health (Monash University) based in Melbourne, and completing a PhD in this field, reported back about HIV cure research being presented through the @HIVCureAU Twitter handle.

HIV Criminalisation and HIV Law: Rapportage by Paul Kidd

At AIDS2022, research and action on HIV criminalisation and HIV law were well represented, summarised in this twitter thread by @PaulKidd.

The Silver Zone: a Networking Zone for Older Adults Living with HIV

Globally, the face of HIV is an ageing one. Although in supportive systems people are living longer with access to effective treatments, many older adults living with HIV and HIV Long-Term Survivors are coping with the lasting impact of untreated HIV, age-related comorbidities and loss. In the era of COVID-19 and “working to end the HIV epidemic”, many feel isolated and uncertain about the future.

The Silver Zone in the AIDS2022 Global Village is a place for older people living with HIV to re-engage with the HIV community and follow the science on HIV and ageing; to feel included and celebrated.

Bi+ People Living with HIV: Positive Networking Zone

Women’s Networking Zone

Breast/chestfeeding guidance and advocacy

PozQoL (Quality of life among people with HIV) and AusQoL (the Australian Accord)

Panel discussion on Person-centered Care

‘Key Populations’

Long-acting ARV Treatment

Video:  What’s new in long-acting formulations of HIV medications for prevention and treatment? CATIE (Canada’s source for HIV and Hepatitis C information) spoke to Professor Chloe Orkin at Queen Mary University of London at this year’s International AIDS Conference who covers the new data on long-acting treatment, and their thoughts on the drug pipeline and on equity of access.

Could long-acting injectable cabotegravir and rilpivirine be self-administered? New formulations and alternative injection sites might allow administration of this long-acting treatment. Liz Highleyman reports back results from two studies which were presented to the 24th International AIDS Conference (AIDS 2022), which was held in Montreal, Canada.

HIV/AIDS in the Asia-Pacific

Highlights from the Australasian HIV&AIDS Conference 2022

Mon 29 August — Thu 1 September 2022

The complete program for the joint virtual Australasian Sexual Health and HIV&AIDS Conference #HIVAIDS2022 & #SH2022, held at the Sunshine Coast Convention Centre, Queensland, has a live and on-demand full program. NAPWHA has compiled a selective list of program highlights that may be of interest for our communities below.

Community welcome: Robert Mitchell, Past-NAPWHA President

NAPWHA Rapportage by Daniel Reeders

Couldn’t make the conference? NAPWHA Learning Officer, Daniel Reeders, provided an excellent coverage and rapportage of the 4-day conference program via the NAPWHA Twitter feed.

Satellite Session: Going beyond viral suppression

Poster #312 Hidden in Plain Sight? Creating a Culturally-Appropriate Peer Navigation Model to Facilitate Engagement with PLHIV from Culturally and Linguistically Diverse Backgrounds

Poster #312: Hidden in Plain Sight? Creating a Culturally-Appropriate Peer Navigation Model to Facilitate Engagement with People Living with HIV from Culturally and Linguistically Diverse Backgrounds

Background:  Positive Life NSW (PLNSW) adapted a peer navigation model to build capacity of CALD PLHIV utilising Peer Navigators to role-model and share their lived experiences, improving the health, quality of life outcomes and increasing health literacy and capacity of CALD PLHIV to self-advocate. Engaging Peer Navigators from the CALD community has provided a deeper understanding of culture and remains agile yet sensitive to the developing needs of this priority population. CALD Community Peer Navigators use a range of different tools and modes of communication to address social isolation, stigma / discrimination, system navigation, peer support and program follow-up..

This poster was presented at the Joint HIV&AIDS & Sexual Health Conference 2022.  See also the abstract submitted

Poster #56: Lessons From The Archive: Queer Indonesia Archive

Poster #56: Lessons From The Archive: Queer Indonesia Archive

Background:  In Indonesia the lived experiences and narratives of queer people are being challenged, erased, and delegitimized in the national collective memory. For the lasttwo years the Queer Indonesia Archive (QIA) – a volunteer run, Indonesia based digital archiving project – has been building a digital collection reflecting the histories of queer communities. QIA utilises a process of community consultation, material collection and exhibition as it’s community archive process. Through this method the archive has built an accessible collection of digital objects to promote cross generational engagement, build community capacity and ensure a community collective memory of the HIV response.

This poster was presented at the Joint HIV&AIDS & Sexual Health Conference 2022.  See also the abstract submitted

Poster #126: GIPA Audit – Assessing the National Association of People Living with HIV Australia’s engagement with people living with HIV

Poster #126:  GIPA Audit – Assessing the National Association of People Living with HIV Australia’s engagement with people living with HIV

Background:  The National Association of People Living with HIV Australia (NAPWHA) relies upon its membership and the body positive to understand the priorities for people living with HIV (PLHIV) across Australia. As the national peak organisation representing PLHIV, they commissioned an independent assessment of their engagement with positive people, including 17 priority populations.

This poster was presented at the Joint HIV&AIDS & Sexual Health Conference 2022.  See also the abstract submitted

Poster #269:  Re-imagining the role of the NAPWHA Treatment Outreach Network

Poster #269: Re-imagining the role of the NAPWHA Treatment Outreach Network

Background:  NAPWHA’s Treatment Officer Network (TON) has operated for over twenty years. During that time the treatments landscape has changed fundamentally, as treatments have become simpler and easier to take, resulting in less demand from clients for treatment advice and support.

This poster was presented at the Joint HIV&AIDS & Sexual Health Conference 2022.  See also the abstract submitted

Poster #293:  Living with HIV and injecting drugs – A health literacy community consultation

Poster #293:  Living with HIV and injecting drugs – A health literacy community consultation

Background: A pioneering community network has been developed for Asian people living with HIV under the NAPWHA Health Literacy Framework project. The Positive Asian Network Australia (PANA) was established as a peer-led community mobilisation initiative, formed by HIV peers and the project Pilot Lead, Brent Clifton.

This poster was presented at the Joint HIV&AIDS & Sexual Health Conference 2022.

Poster #296:  Beyond the 4th 90 – The Australian Community Accord on Quality of Life for people with HIV

Poster #296:  Beyond the 4th 90 The Australian Community Accord on Quality of Life for people with HIV

Background: With funding from ViiV Healthcare, NAPWHA delivered an interactive webinar series that invited participants (n=389) to share insights and experiences. Findings informed an Australian Community Accord on Quality of Life for People Living with HIV:  A person-centred framework for eliciting and addressing the drivers of self-perceived quality of life. Development of the Accord and the availability of the PozQOL measure put Australiain position to lead in the global push to recognise good quality of life as a vital goal for national and global strategies that aim to reduce both the incidence and impact of HIV.

This poster was presented at the Joint HIV&AIDS & Sexual Health Conference 2022.

Poster #301:  Mobilising community among heterosexual men living with HIV in Australia

Poster #301:  Mobilising community among heterosexual men living with HIV in Australia

Background: HIV notifications among heterosexual men have been increasing over the past decade, particularly among Australian-born males (Kirby, 2018). The NAPWHA Health Literacy Framework project established HetMAN a network of heterosexual men to articulate their health literacy needs across the HIV care continuum..

This poster was presented at the Joint HIV&AIDS & Sexual Health Conference 2022.

Poster #302:  Developing the Health Literacy Framework – The central role of Community Advocates

Poster #302:  Developing the Health Literacy Framework – The central role of Community Advocates

Background: The Health Literacy Framework project is a three-year initiative (2019-21) which aimed to improve HIV-related health literacy at the individual, community, organisational, sectoral, health system, and societal levels. It focused on engaging diverse cohorts of PLHIV who have not benefited equally from recent successes across the HIV care continuum. These included positive women, heterosexual men, people from Asian and Latin American backgrounds, and people who inject drugs.

This poster was presented at the Joint HIV&AIDS & Sexual Health Conference 2022.

Poster #303:  A systems approach to understanding the needs of Asian-born men living with HIV in Australia

Poster #303:  A systems approach to understanding the needs of Asian-born men living with HIV in Australia

Background: A pioneering community network has been developed for Asian people living with HIV under the NAPWHA Health Literacy Framework project. The Positive Asian Network Australia (PANA) was established as a peer-led community mobilisation initiative, formed by HIV peers and the project’s Community Advocate, Jimmy Yu-Hsiang Chen.

This poster was presented at the Joint HIV&AIDS & Sexual Health Conference 2022.

ViiV Positive Action Grants 2022

ViiV Healthcare Australia through its Positive Action Community Grants is looking to fund community-based projects that reach those most affected by, or at risk of HIV, particularly in marginalised, hard to reach or vulnerable populations. The funding supports initiatives that are innovative, sustainable and produce tangible results for PWHIV.

Partnerships and collaborations are encouraged and ViiV will prioritise submissions that allow for implementation replication on either a national level or in other jurisdictions.

 

About the funding initiative

ViiV Healthcare is a specialist pharmaceutical company 100% focused on combating, preventing and ultimately curing HIV and AIDS. ViiV’s collective determination is to make sure no one at risk of or living with HIV is left behind.

Its vision is to end the HIV/AIDS epidemic, by developing innovative medicines, delivering and supporting more effective solutions in care and being partners – to people with HIV (PWHIV), their carers and communities.

One way in which ViiV Healthcare supports the community response is via the Australian Positive Action Community Grants program. This program is aligned with the current priorities of the Eighth National HIV Strategy and contributes to the holistic response of UNAIDS 90–90–90 goals and “the fourth 90”.

Positive Action was created in 1992 by the pharmaceutical company GSK, who still holds an interest in ViiV. It was the first pharmaceutical company program to support communities affected by HIV and AIDS.

Key dates

Applications open Monday, 3rd October 2022 (9am)

Applications close Monday, 31 October 2022 (5pm)

Find out more and apply

Nominations for the Board of Directors now open

NAPWHA Board nominations 2022
The National Association for People with HIV Australia (NAPWHA) is Australia’s peak non-government organisation representing community-based groups of people living with HIV (PLHIV) across Australia. We provide advocacy, policy, health promotion, effective representation, and outreach on a national level. A strong and effective Board of Directors will keep people living with HIV at the forefront of the response. This will require a dedicated team to align with the vision of the organisation to see a world where people living with HIV live their lives to their full potential, in good health and free from stigma and discrimination.

Beyond ensuring the good governance of the organisation, elected Directors will play a significant role overseeing the implementation of our Strategic Plan 2022 and beyond, as well as supporting staff, volunteers and stakeholders through new opportunities and challenges as we advocate for the health and well being of the HIV community in Australia.

This is a fantastic opportunity for inspirational leaders who have a genuine passion for advancing the rights of people living with HIV.

Nominations are now sought for the positions of
Vice President and three (3) Ordinary Directors.

Nomination timeline

  • Monday 31 October 2022 — Nominations close at 5:00PM (AEST)
  • 18 & 19 November 2022 — Results announced at NAPWHA Annual General Meeting

How to apply

To nominate to stand for a NAPWHA Board position you must:

  1. Correctly complete the NAPWHA Nomination Form and your personal Supporting Statement (a brief personal profile written by the person being nominated, not exceeding 2 pages).
  2. Indicate which board position you are standing for
  3. Have your nominators affix their names to the form along with the name of the PLHIV organisation that they are members of, and sign the form; all in the correct places.
  4. Send the correctly filled out form and your personal statement to the Returning Officer by email or post.
  5. Note: All nominations must be RECEIVED by no later than 5.00 PM Monday 31 October 2022.

See also:

Submit your nomination

Nominations are to be in writing, addressed to the Returning Officer, no later than 5.00 PM Monday 31 October 2022:

  • By post to PO Box 917 Newtown NSW 2042
  • By email to rhys@halc.org.au
  • By fax to (02) 9206 2053

 

Medibank Data Leak: Update

Medibank Data Leak: Update

Medibank confirmed yesterday that the current data disclosures DO NOT include HIV status, contrary to what was announced by the media (this has now been corrected). However, NAPWHA understands that the potential for HIV status to be the subject of future releases of stolen data is still concerning for many PWHIV who keep their HIV status private.  

At present, only about 100 records have been released and they do not contain HIV information. People with HIV who have not yet been notified that their data is part of the data leak should draw some reassurance from this. Medibank has already contacted those whose data is involved. 

 We know that this will be an unsettling time for many people living with HIV who fear their personal health information might be in the hands of the Medibank hackers. Please reach out for support from NAPWHA or the ‘people with HIV’ organisations in your State or Territory if you need it. 

 NAPWHA will continue to monitor the situation and respond where we are able. We are working with Medibank and the AFP to provide appropriate support and assistance to people with HIV caught up in this data breech.  

We encourage anyone who has been affected to reach out to Medibank and to follow their advice. If you are contacted by someone claiming to have your data, you should immediately contact the Australian Federal Police on (02) 1300 292 371 or call 000.

Below are several contacts to services that can provide you with the advice or support you require. 

What to do:
Medibank Cyber event updates and support:
Cyber Response Support Program 

Report a crime:
Australian Federal Police 
(02) 1300 292 371 or 000
AFP media release 
ReportCyber Website 

Contact Medibank Private
13 23 31 national and international Medibank customers 
13 42 46 AHM customers 
1800 081 245 My Home Hospital patients
Website 

Help and Support:
NAPWHA will direct you to relevant support services
1800 259 666 (Free Call)
NAMWHA Members  

 

‘Boldly Positive’ – NAPWHA community shares their journey for World AIDS Day 2022

‘Boldly Positive’ – NAPWHA community shares their journey for World AIDS Day 2022

World AIDS Day 2022 Boldly Positive

World AIDS Day occurs annually on 1 December to raise awareness about the issues concerning HIV and AIDS globally. It is a day to celebrate the inspiring actions by the HIV and AIDS sector and advocates, show support for people living with HIV, and commemorate those who are no longer with us due to AIDS or other conditions related to HIV.

This year’s theme for World AIDS Day in Australia is ‘Boldly Positive’ which aims to “encourage Australians to educate themselves and others about HIV; to take action to reduce the transmission of HIV by promoting prevention strategies; and to ensure that people living with HIV can participate fully in the life of the community, free from stigma and discrimination.” Read more.

Here are what some people from our member organisations and board have to say about how Positive Living organisations are enabling them and other people living with HIV to be ‘Boldly Positive’.

We encourage you to share these testimonies and support your local World AIDS Day events & HIV organisations.

Internationally: The World Health Organization’s theme this World AIDS Day is ‘Equalize’ reminding us that the inequalities experienced in the HIV epidemic are not inevitable and we can combat them. It is a call for action for an increase in the availability, quality and suitability of services, law reform, and the sharing of technology. Read more.

We just announced our 2022 Community Champions, recognising inspiring action and unsung supporters in HIV.