Positive Asian Network Australia (PANA)
The Positive Asian Network Australia, known as PANA, is an advocacy group represented by and for a collective of people living with HIV in Australia of Asian cultural background – including North-East Asia and South-East Asia.
Who we are
PANA was founded in 2021 through an initiative of the NAPWHA HIV Health Literacy Framework project – a community-led project which employs a participatory action research approach aiming to build the capacity of PLHIV communities and to develop tailored health promotion.
Led by Community Advocate, Jimmy Yu-Hsiang Chen, who works in collaboration with a founding group of other peers – PANA has been established through NAPWHA and continues to advocate for health literacy and health promotion. The PANA group meet regularly for advocacy work and to support social networks.
How to engage with us
Are you living with HIV in Australia and are of Asian background? We would like to hear from you. We meet regularly to advocate on behalf of ourselves. Our social network aims to provide a safe inclusive spaces and ways to connect with each other for social connection.
It is also a way to exchange conversations relating to HIV and general health – this includes talking about navigating the healthcare system in Australia. This may include:
- Finding a good General Practitioner (GP) who prescribes HIV medication – otherwise known as a S100 GP Prescriber.
- Exchanging information about treatments, drug interaction and adverse effects
- General health information – such as dentistry
PANA Membership form
Join us for an online PANA Community Trivia event on Tues 30 Nov 2021
This PANA Trivia Night, held via Zoom, on Tuesday 30 November 2021 is a fun and social event aiming to connect community members from all Australian States and Territories. You can join ONLINE and it is FREE to join. This event provides a safe and inclusive place for us to connect.
PANA values your confidentiality and in the TRIVIA NIGHT you can choose to remain anonymous. In the registration form below, you also have the choice of whether you wish to use a pseudonym (something that is not your real name) into the form.
Quality of life among gay and bisexual men living with HIV from culturally and linguistically diverse, or migrant, backgrounds
PANA a partner of the research is being carried out by the following researchers:
- Dr Jennifer Power ARCSHS Chief Investigator
- Dr Thomas Norman ARCSHS Co-Investigator
- Eloise Montiero NAPWHA Co-Investigator
- Jimmy Yu Hsiang Chen NAPWHA Co-Investigator
- Dr John Rule NAPWHA Co-Investigator
This research is funded by the Australian Department of Health as part of the HIV Futures 10 study. NAPWHA are providing additional financial support.
1. What is this Study about?
You are invited to participate in a study about the needs and experiences of men (cisgender or transgender) living with HIV who have migrant experiences or are from culturally and linguistically diverse communities and who have sex with men.
In this study we are interested in hearing about the ways in which HIV affects people’s lives and the places where people seek information, care and support. In particular, we want to understand how the HIV sector can better needs of people from migrant backgrounds who are living with HIV.
2. Do I have to participate?
Being part of this study is voluntary. If you want to be part of the study we ask that you read the information below carefully and ask us any questions.
You can read the information below and decide at the end if you do not want to participate. If you decide not to participate this won’t affect your relationship with La Trobe University, NAPWHA or any other listed organisation.
3. Who is being asked to participate?
You have been asked to participate because:
- You are aged 18 years or older
- You are living with HIV
- You identify as a man (cisgender or transgender)
- You have sex with men
- You have migrated to Australia or are part of a culturally and linguistically diverse community in Australia
- Currently living in Australia as a temporary resident, refugee, international student, Australian permanent resident or citizen.
4. What will participation involve?
If you want to take part in this study, we will ask you to partake in an interview. Interviews may take place either over the phone, or via Zoom. It will take approximately one to two hours of your time to be part of this study. You will be offered regular breaks during the course of the interview.
Question topics include a bit about your background, your experiences of migrating to Australia, your HIV diagnosis and experience accessing treatment, care and support. We are also interested in your opinions about how Australian services could better meet the needs of people living with HIV from migrant backgrounds.
With your permission, we will record the interview (audio only) and make a written transcript.
5. Who will be doing the interview?
The interview will be done by a peer worker based at the National Association for People with HIV Australia (NAPWHA). The peer worker has a lot of experience working in the HIV sector and with gay and bisexual men.
If you would prefer to be interviewed by another researcher from La Trobe University this can easily be organised.
6. Can I have a translator for the interview?
Yes, if you feel you need a translator for the interview please let us know when we arrange your interview. We will use a professional translator who will be required to provide written assurance that they do not have any political or cultural conflicts.”
7. What are the benefits?
This study will provide a safe and respectful forum for you to reflect on your experiences and perspectives. You will receive a $50 gift voucher for your participation in this research.
It is hoped that this research project will help to improve services for people living with HIV.
8. What are the risks?
With any study there are (1) risks we know about, (2) risks we don’t know about and (3) risks we don’t expect. If you experience something that you aren’t sure about, please contact us immediately so we can discuss the best way to manage your concerns.
|Dr Jennifer Power||Lead Investigator||03 9479 8721||Jennifer.email@example.com|
We have listed the risks we know about below. This will help you decide if you want to be part of the study.
- There is a potential risk of that you may feel upset or distressed when discussing your experiences of living with HIV. We will provide you with information about services you can access if you need to access support or information. The peer interviewer can also put you in touch with appropriate services and supports.
- After the interview, you will have an opportunity to read the transcript of your interview. You can also withdraw you consent to participate at any time, including up to four weeks after the interview.
If you would like to debrief after your interview, please contact the lead researcher Jennifer Power using the contact details listed above.
9. What will happen to information about me?
We will collect information about you in ways that will not reveal who you are. This means you cannot be identified in any type of publication from this study. We will not use your real name and we will not report on details of your life that could potentially be identified, such as your age or how long you have been in Australia.
Where applicable, your audio recording will be destroyed after transcription. We will keep your other information, such as your consent form and the de-identified written transcript of your interview, for 5 years after the project is completed. After this time, we will destroy all of your data.
We will collect, store and destroy your data in accordance with La Trobe Universities Research Data Management Policy which can be viewed online using the following link: https://policies.latrobe.edu.au/document/view.php?id=106/.
The personal information you provide will be handled in accordance with applicable privacy laws, any health information collected will be handled in accordance with the Health Records Act 2001 (Vic). Subject to any exceptions in relevant laws, you have the right to access and correct your personal information by contacting the research team.
If you inform us of any past illegal activity either committed by you or someone you know, this information will remain confidential. Your contribution to the research would be disclosed outside the research team ONLY if required by a court subpoena or unless the research team has a legal obligation to report it to the relevant authorities in accordance with state, territory and federal law. In this unlikely event the research team may have to divulge the identities of participants.
If you inform us of any planned illegal activity which is likely to have an adverse and harmful impact on others, we have an obligation to report this information to the La Trobe University Human Research Ethics Committee. If advised to do so by the Committee, we may be required to report this information to the relevant authorities.
10. Will I hear about the results of the study?
At the conclusion of this study will produce a report that will be publicly available online. You can request to be notified when this is available.
11. What if I change my mind?
If you participate in an interview, you can choose to no longer be part of the study at any time until four weeks following the interview. You can let us know by:
- Completing the ‘Withdrawal of Consent Form’ (provided at the end of this document);
- Calling us; or
- Emailing us
When you withdraw any information about you will be withdrawn from the research study.
Your decision to withdraw at any point will not affect your relationship with La Trobe University, NAPWHA or any other organisation listed.
12. Who can I contact for questions or want more information?
If you would like to speak to us, please use the contact details below:
|Dr Jennifer Power||Lead Investigator||03 9479 8721||Jennifer.firstname.lastname@example.org|
13. What if I have a complaint?
If you have a complaint about any part of this study, please contact:
|Ethics Reference Number||Position||Telephone|
|HEC21255||Senior Research Ethics Officer||+61 3 9479 email@example.com|
14. Support Services:
More information about HIV or other issues raised in the survey
We understand that the things covered in this survey may raise questions or uncomfortable issues. If you would like to talk about these with people who are experienced in these matters, please contact one of the organisations listed below.
- Lifeline (telephone support counselling)
www.lifeline.org.au – 13 11 14
- Health Direct Australia (to speak to a nurse or GP for free) –
1800 022 222
- Australian Federation of AIDS Organisations
www.afao.org.au – (02) 9557 9399
- AIVL (Australian Injecting & Illicit Drug Users League) www.aivl.org.au – (02) 6279 1600
- National Association of People with HIV Australia (NAPWHA) https://napwha.org.au/ – (02) 8568 0300 or 1800 259 666
- HIV/AIDS Legal Service (NSW)
http://halc.org.au – (02) 9206 2060
- Q-Life CALL, national counselling and referral service for people who are lesbian, gay, bisexual, trans, and/or intersex
http://qlife.org.au/ – 1800 184 527
- Meridian www.meridianact.org.au – (02) 6257 2855
- QLife (https://qlife.org.au/) – 1800 184 527 FREE CALL
- Positive Life NSW
http://www.positivelife.org.au/ – (02) 9206 2177 or 1800 245 677 (freecall)
- HIV Information Line – 1800 451 624 FREE CALL
- NSW PEP Hotline – 1800 737 669 FREE
- ACON http://www.acon.org.au – (02) 9206 2000 or 1800 063 060
- PozHet (Heterosexual HIV/AIDS Service)
http://pozhet.org.au – 1800 812 404
- Multicultural HIV and Hepatitis Service
https://www.mhahs.org.au/ – 1 800 108 098 FREE CALL
- NSW Service for the Treatment and Rehabilitation of Torture and Trauma Survivors (https://www.startts.org.au/about-us/) – (02) 9646 6700
- Northern Territory AIDS and Hepatitis Council http://www.ntahc.org.au/ – (08) 8944 7777 (Darwin) or (08) 8953 3172 (Alice Springs)
- Queensland Positive People
http://www.qpp.net.au/) – (07) 3013 5555 or 1800 636 241 FREE CALL
- QuAC – Queensland AIDS Council
http://www.quac.org.au/ – (07) 3017 1777 or 1800 177 434 (outside Brisbane)
- SAMESH (https://samesh.org.au/) – (08) 7099 5300
- Positive Life South Australia
https://positivelifesa.org.au/ – 0410 707 923
- MOSAIC Blood Borne Viruses Support Services (Relationships Australia SA) – 1300 364 277 (services)
or 1800 182 325 (country callers)
- RedThread – Tasmanian Council on AIDS, Hepatitis & Related Diseases https://www.redthread.org.au/ – (03) 6234 1242
- QLife – https://www.switchboard.org.au/ – 1800 184 527
- PEP 24 hour Info line – 1800 889 887
- Thorne Harbour Health
https://thorneharbour.org/ – (03) 9865 6700
- Living Positive Victoria
http://www.livingpositivevictoria.org.au – (03) 9863 8733
- Positive Women Victoria
http://www.positivewomen.org.au/ – (03) 9863 8747
- QLife – https://www.switchboard.org.au/ – 1800 184 527
- Rainbow Door – https://www.rainbowdoor.org.au/ – 1800 729 367
- Multicultural Health & Support Service https://www.ceh.org.au/multicultural-health-support-service/– (03) 9418 9929
- Gay and Lesbian Immigration Taskforce
https://www.glitfvic.org.au/ – (03) 5294 0293
How our meetings are conducted
The group connects primarily by teleconference, with capacity for an annual face-to-face meeting. An email loop is used to facilitate discussion and consultation between meeting times, circulate information for discussion, and assist in NAPWHA’s consultation process as matters arise.
About the Health Literacy Framework project
Activities undertaken In 2021 to establish PANA:
- An core reference group consisting of NAPWHA Community Advocate Jimmy Yu-Hsiang Chen, Justin Xiao, and Dai Aoki was established to decide on project directions
- In May-June 2021, Jimmy Yu-Hsiang Chen and Justin Xiao co-facilitated a group discussion called Community Conversations with eight men living with HIV of Asian background. Participants joined the community conversation (held over Zoom) from Victoria, New South Wales, Queensland, and the Northern Territory.
- Jimmy Yu-Hsiang Chen further followed-up with focus group participants over one-to-one semi-structured interviews via video call. This aimed to investigate the needs and opportunities to enhance HIV health literacy.
- A summary of this investigation or community-led social research will become available in November 2021.
From this investigation, the health literacy project aims to implement some project initiates, including:
- The active involvement of more PLHIV of Asian background to participate in existing social research studies – including HIV FUTURES 10, a survey which focuses on health, wellbeing and quality of life.
- A closed-membership Facebook group has been established to continue fostering social connection